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Schizophrenia Bulletin 2004 30(3):511-541;
© 2004 by Oxford University Press and the Maryland Psychiatric Research Center (MPRC)
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© Oxford University Press

Measuring Mental Illness Stigma

Bruce G. Link, Ph.D., Professor of Epidemiology and Sociomedical Sciences, Lawrence H. Yang, Ph.D., Post-Doctoral Fellow, Jo C. Phelan, Ph.D., Associate Professor of Sociomedical Sciences and Pamela Y. Collins, M.D., M.P.H., Assistant Professor of Epidemiology
Columbia University New York, NY and Research Scientist, New York State Psychiatric Institute New York, NY
Columbia University
Research Scientist New York State, Psychiatric Institute

Send reprint requests to Dr. B.G. Link, Department of Epidemiology, Columbia University, 722 West 168th Street, Room 1609, New York, NY 10032; e-mail: BGLl{at}Columbia.edu

The effectiveness of efforts designed to address mental illness stigma will rest on our ability to understand stigma processes, the factors that produce and sustain such processes, and the mechanisms that lead from stigmatization to harmful consequences. Critical to such an understanding is our capacity to observe and measure the essential components of stigma processes. This article is designed to assist researchers in selecting or creating measures that can address critical research questions regarding stigma. Our conceptualization of stigma processes leads us to consider components of labeling, stereotyping, cognitive separating, emotional reactions, status loss, and discrimination. We review 123 empirical articles published between January 1995 and June 2003 that have sought to assess mental illness stigma and use these articles to provide a profile of current measurement in this area. From the articles we identify commonly used and promising measures and describe those measures in more detail so that readers can decide whether the described measures might be appropriate for their studies. We end by identifying gaps in stigma measurement in terms of concepts covered and populations assessed.

Keywords: Stigma / discrimination / public attitudes / measurement / social rejection


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